Aaarrrgh! It makes me so mad! Lucas lives in the technology capitol of the world, and yet the majority of intellectual and financial support is directed at figuring out how to share homemade videos on the Internet, not at trying to find a cure for diseases that rob us of our future teachers, scientists and artists.
That's why there's no resting, no relaxing - once your child has NB, its like they've been kidnapped. And until the kidnapper is DEAD, you can't ever stop. We've got to kill NB.
2 comments:
It is such a frightening disease...you fight it and fight it for months and years and then finally you're stable only to be taken in a blink of an eye. Lucas's story is devastating. I'll keep praying and raising awareness and money. My heart goes out to all the NB warriors and families.
lisa
lisa says it perfectly! we won't let the awareness, and prayers, end!
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