11/02/2008

Hollow



We miss Max terribly, more so with every day that passes with him not around us. As the first holiday without him, and on the two month anniversary of his leaving us, October 31, 2008 was a tough day. On Halloween night, Nicky decided to chuck the fireman outfit he picked out and firmly settled on being a, "s-s-s-s-s-sooooooooooper, s-s-s-s-s-soooperhero." He has a slight studder which we believe is just temporary and is actually fading away slowly... his brain just seems to work quicker than his mouth, which is better than the other way around, we think.

Unfortunately, we didn't get a photo of Hannah this year, but she was a kittycat, and a very cute one at that. (Edit - we did!)

I had dinner on Wednesday with John London (Penelope) and Scott Kennedy (Hazen) in NYC, and yesterday, Melissa and I had lunch with the Bruskows (Eden). It was good to be able to connect with some other NB angel parents, though it seems grim to say its good to meet with other parents whose children have also died from neuroblastoma.

I had ambitions for a much longer post, but seem to have lost my muse and so will close for now. Thanks to all for your continued support and comments. It helps to know that most if not all of you are still there.

11 comments:

Anonymous said...

I thought of you guys on Halloween because it is your first holiday without Max and because it is such a kid-centric holiday. Also the 2 month anniversary of his passing...that's a lot to have to deal with on one day...

Nicky looks great in the Incredibles costume - I'll bet Max would have thought that was cool!

Anonymous said...

We will always be there in loving support. xo Linny

Shannon B. said...

We were thinking about you all and knew that it would be a difficult and bittersweet Halloween. We are glad you got to take SUPER Nic and Kittycat Hannah out for some trick-or-treating....we are sure that Max was there in spirit as he is in our hearts everyday. xo, Shan

San Diego Mom said...

I think all the bad guys are going to have a run for their money if they see Nic the superhero. Every time I visit your blog, it reminds me that I am not going to see an update on Max's condition but his memories. As we were getting ready for the Halloween, I reflected back on the previous year's Halloween and thought of all the changes. Warm Halloween in T-shirts in San Diego last year vs Halloween in rain in Nor Cal this year. But most of all, I was thinking that Max is not trick-or-treating this year, at least here on earth with us mortals. I wonder what he is "up there" with other angels.....

Warm hugs,
Shiho

Anonymous said...

You're welcome for the continued visits. I'm grateful that you continue to post. I'm thinking it must be comforting and healing to meet with other angel parents, must not be anything else that does quite what that does for you.

Peace,

Brian

Anonymous said...

You have all my love and support, always. You are constantly in my thoughts and prayers. This holiday season...I ache for you and Hannah and Nic, and am at such a loss of words, except how truly amazed I continue to be by you and Melis...and I know how proud Max would be of both of you...he had the very best parents, ever.

Debbie

Anonymous said...

Thinking of you all. Hope Nicky the superhero and Hannah the kitty had a good day. The title of your post says it all.
Margot

Anonymous said...

Thanks for sharing The Brave Little Soul. It has helped me. I still can't believe that Max is gone from this world but I know he is happy and free of pain in Heaven.

Bree said...

Just snuck downstairs into the computer room to check in on you guys as you have been on my heart a lot lately! Just wanted you to know that I am thinking of you!!
Love,
Bree

Deqlan said...

prayers and support and our thoughts of you all, will always continue. love the pics, in our prayers , God Bless Mark Samm Deqlan

Anonymous said...

I couldn't go back to sleep so I decided to pop out of bed to visit Lucas and Max. Wish it didn't have to be this way...

t

Post a Comment