tag:blogger.com,1999:blog-9911796.post3836253675196481863..comments2023-08-02T08:48:38.920-07:00Comments on Max Mikulak - neuroblastoma angel: Internet FriendsAndy (Dad to Max)http://www.blogger.com/profile/15957283970526429773noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-9911796.post-12130443825476080802010-01-10T17:12:18.608-08:002010-01-10T17:12:18.608-08:00I am so glad you have met and know these people wh...I am so glad you have met and know these people who bring you comfort. It makes me happy to know that you are finding comfort, as I feel helpless and out of touch. Thinking of you and the family always as our house continues its constant full calendar and chaos. xo, shanShannon B.https://www.blogger.com/profile/06735054835214948760noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-614792448080002572010-01-10T07:51:59.317-08:002010-01-10T07:51:59.317-08:00There is nothing quite like the first time, after ...There is nothing quite like the first time, after relapse, when the oncologist looks to you and asks 'what do you think?' when discussing the relapsed therapy options. When doctors go from telling you what to do to asking which impossible option YOU want to give your child is like nothing else on this earth. No one, not even up front NB parents, can know what this is like so when you find yourself here - and thanks to the internet - get to read, see, hear, and FEEL that you are not alone on this insane parental island from Hell there is no way to not feel that bond.<br /><br />Sadly, there is yet even another place these parents find themselves and I'm sure a lot of my comments and complaints can cause some confusion and frustration to you both just as some things up front folks can say make me say 'they have no idea'. In spite of my petty complaints.... I am impossibly thankful for these friendship and connections because no one else (thankfully) can 'get it' and as much as I love people and company I'd rather spend my life alone than make another friend in this place where we all found one another.Will's Dadhttps://www.blogger.com/profile/04371621867709550355noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-59640157775510009412010-01-10T05:48:54.566-08:002010-01-10T05:48:54.566-08:00I absolutely agree. It's completely impossibl...I absolutely agree. It's completely impossible to describe how the conversation picks up just like we were continuing a conversation that we started a few days ago, perhaps as if we had kids in the same school (I guess in a way Max and Erin did go to the same school) or some other regular thing in common.<br /><br />See you next time.Vickiehttps://www.blogger.com/profile/03232676927126653489noreply@blogger.com