tag:blogger.com,1999:blog-9911796.post6694863883397156985..comments2023-08-02T08:48:38.920-07:00Comments on Max Mikulak - neuroblastoma angel: The night Max went to HeavenAndy (Dad to Max)http://www.blogger.com/profile/15957283970526429773noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-9911796.post-35216659924073224472015-02-02T11:38:33.786-08:002015-02-02T11:38:33.786-08:00I just want to say that I am so sorry to read abou...I just want to say that I am so sorry to read about Max's untimely passing. It breaks my heart a great deal to read stuff like that, specially Children so young like Max. People offense ask my what on earth possessed me to start shaving my head clean, (its been 5yrs) and I simply say its my way to support all cancer patients from children to adults. If they have to walk around with shinny heads without any choice then I'm doing it to. I'm proud to show support that way. God bless you and ur family and may Max be resting in piece in God's garden<br /> ( deemertommy80@gmail.com )Anonymoushttps://www.blogger.com/profile/17280533632865040670noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-77090897598467591692013-08-31T21:03:35.914-07:002013-08-31T21:03:35.914-07:00Five years, and I'm still devastated. I miss h...Five years, and I'm still devastated. I miss his beautiful smile every day. I'm glad, though, that Jesus was there to take his hand. God bless.<br />- A friend of MaxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-51170676142490251792011-08-30T20:37:10.563-07:002011-08-30T20:37:10.563-07:00Thinking of max today. What a sweet boy.Thinking of max today. What a sweet boy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-39055630243252619782011-06-27T12:40:26.437-07:002011-06-27T12:40:26.437-07:00You are beautiful people who deserved so much more...You are beautiful people who deserved so much more time. Max was special, thank you for sharing him. Despite not having enough time, he's changed the world for the better. As a mom, my heart just aches for you, and rejoices at the same time, for the way you proudly present him to the world. Your family is inspiring and incredibly strong. You honor your Max. He must be so proud of you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-47255535570296348472011-02-21T05:26:43.349-08:002011-02-21T05:26:43.349-08:00Our dear friends just lost their 4 year old sweet ...Our dear friends just lost their 4 year old sweet daughter lastnight (Sunday 6:30pm). The fight was hard and fast. I am so sorry for and your sweet Max. Thank you for sharing this with us. For some reason today I find myself looking for answers. RIP Max and our sweet Caitlyn<br />Always, <br />Shannon MAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-2901588715994309022010-09-13T06:29:36.091-07:002010-09-13T06:29:36.091-07:00We were tied up on sat. but got up at 6am yesterda...We were tied up on sat. but got up at 6am yesterday and walked our 1.5miles with our dog thinking of Max the entire timeUnknownhttps://www.blogger.com/profile/09845709402005325810noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-32628292041001182412010-09-12T18:25:50.657-07:002010-09-12T18:25:50.657-07:00Again, I am a reader and have loved Max and your f...Again, I am a reader and have loved Max and your family from afar for some time. I remember right before Max passed away I had colored a pepper at Chili's and wrote "Max You're MY Superhero", only to sign online the next morning, maybe 10hrs later to see he had passed away. Please know in all of these following months and even just last week I went back to Chili's and made the same pepper, just for your boy. Love to your family, Always.<br />Laurie from NJLaurienoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-54179573438079414622010-09-08T03:20:04.294-07:002010-09-08T03:20:04.294-07:00What a beautifully written and touching account of...What a beautifully written and touching account of Max's last night. I read it through my tears and it's so true - you need to grab each moment you can with them once you realise there's no way they'll beat the illness. My heart goes out to your family. Thankyou so much for sharing your story. Love Stephanie.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-59277155487725912242010-09-05T12:53:31.676-07:002010-09-05T12:53:31.676-07:00As always, I am brought to tears--flooded with mem...As always, I am brought to tears--flooded with memories of Max, and overwhelmed by what you went through.<br />With all my love,<br />HollyHollyhttps://www.blogger.com/profile/02361765105991101873noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-41390099234125630852010-09-01T23:00:15.189-07:002010-09-01T23:00:15.189-07:00Thank you for sharing.Thank you for sharing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-63855756783293909242010-09-01T09:31:47.489-07:002010-09-01T09:31:47.489-07:00Melissa and Andy, as usual, I come to your site an...Melissa and Andy, as usual, I come to your site and I end up in tears yet profoundly touched by your ability to verbalize things I cannot and do not want to ever imagine. You continue to honor and share Max in ways that touch people in ways you'll never imagine. Thank you. We hold you you in our thoughts and prayers every day.<br />Maureen, Greg, Maddie and Thomas McCabeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-70501154247525856292010-09-01T08:48:06.626-07:002010-09-01T08:48:06.626-07:00I have followed Max's story for quite a while....I have followed Max's story for quite a while. He has the same birthday as my lovely daughter, and he died on the same date as my wonderful mother. I think of him often as I volunteer at a local Ronald McDonald House and I hope that what I do there, baking cookies, playing board games, simply listening, helps children like Max, even just a little bit. He touches my heart.maryhttps://www.blogger.com/profile/05351539969296316509noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-18092827929665043692010-09-01T07:01:25.500-07:002010-09-01T07:01:25.500-07:00Thank you for sharing this with us all- Max contin...Thank you for sharing this with us all- Max continues to remain in our memories and hearts and you all continue to remain in our prayers and thoughts, always<br />God Bless and continue to carry and guide you, Mark Samm Deqlan LoganDeqlanhttps://www.blogger.com/profile/15658796285385287972noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-49046545743812882022010-08-31T22:57:54.578-07:002010-08-31T22:57:54.578-07:00Thank you for sharing your last moment with Max. I...Thank you for sharing your last moment with Max. It must have been such a relief for Max that the final departing place was between his mommy and daddy, on their bed, and not on a hospital bed. Such a wrenching experience for you, though. No words can describe the grief of parents who have to watch the life of their child slip away right in front of their own eyes....My thought and prayers are with you all. <br /><br />XOXOXO ShihoSan Diego Momhttps://www.blogger.com/profile/06110203495376659850noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-5304258032547229452010-08-31T22:24:24.921-07:002010-08-31T22:24:24.921-07:00I follow your blog after somehow getting here mont...I follow your blog after somehow getting here months ago after Layla Grace's passing. Max and another little child, Lucas, seemed to have been such special children. I was heartbroken to read this post. I always wondered how and why he passed so suddenly. He was so happy eating his iced lemonade. Know that some stranger out there in Hoboken, NJ often thinks of your little one while lying in bed at night. I always think of his smile.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-14164831440168765182010-08-31T18:55:30.997-07:002010-08-31T18:55:30.997-07:00I just finished your post on
Maxies passing and I...I just finished your post on <br />Maxies passing and I couldnt stop the tears until I could write and let you know of the sadness we feel for you and Hannah and Nick. He touched all of our hearts in ways we can only imagine. He is still there and will always be a part of our lives. I carry a couple of pictures in my wallet and see him every day and still hope that he will somehow appear and say a few words to me. He was a lovely little man who I know would have made himself into a fine young man. <br />My thoughts and prayers are with you, Andy and Mellisa and Hannah and Nicky. God bless you all. GrandpaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-82225661295032743002010-08-31T16:54:30.940-07:002010-08-31T16:54:30.940-07:00thank you, melissa and andy. very hard to read. i ...thank you, melissa and andy. very hard to read. i miss your max. we will walk in his wide and beautiful path on the 11th. with love, mookimookinoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-79291538296079656172010-08-31T15:21:39.361-07:002010-08-31T15:21:39.361-07:00Thank you for sharing... Although, in hindsight I ...Thank you for sharing... Although, in hindsight I probably shouldn't have read that at work.<br /><br />God bless you all today and always, thank you so much for all you do... from sharing Max and your story to fundraising for a cure.Bree at Clarity Definedhttps://www.blogger.com/profile/08096737995080439327noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-15788650624435144732010-08-31T13:40:46.834-07:002010-08-31T13:40:46.834-07:00Andy and Melis-
You are two wonderful brave paren...Andy and Melis-<br /><br />You are two wonderful brave parents and a true testament to your loving boy.<br /><br />Your post must have been so...so difficult to post and I thank you for sharing. My heart has always broken for your family when I first heard of Max and you guys to actually meeting you at Touch a Truck. I pray for you always.<br /><br />Thank you for all you continue to do for the NB warriors.<br /><br />God bless your family always and we will see you out on the front lines of raising money for a cure!<br /><br />Call on us Inman's anytime, and we will be there to help support.<br /><br />See you at the next event, which we are planning on attending.<br /><br />Max we really wished we could have met you and we ask for you to watch over our kids fighting this disease from the heavens. Max your memory and spirit lives on.<br /><br />Jen Inman<br />www.caringbridge.org/visit/aidaninmanJenhttps://www.blogger.com/profile/17812418614723366640noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-14252545753795115772010-08-31T12:17:57.046-07:002010-08-31T12:17:57.046-07:00Thank you for sharing Max with us. He is a beauti...Thank you for sharing Max with us. He is a beautiful child. Prayers with your family today.Pattynoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-89083733425385521922010-08-31T11:21:43.734-07:002010-08-31T11:21:43.734-07:00Thank you for sharing. All my love to you, eveyone...Thank you for sharing. All my love to you, eveyone that helped you and those who continue to do so. SarahAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-50104174240316991152010-08-31T11:16:11.544-07:002010-08-31T11:16:11.544-07:00I remember checking in on all of you like crazy tw...I remember checking in on all of you like crazy two years ago knowing the devastation that was mounting and yet hoping that in some way my checking in would send waves of strength and love your way. I am still checking in and still hoping those waves of strength and friendship are reaching you, providing you with the knowledge that Max is not forgotten and that his peace and the peace of his loving family is still ever-present in our thoughts and in our prayers.<br /><br />With hope and friendship today and always,<br />Sarah and John Bartosz, Jack's mom and dadSarah Bartosznoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-32340535188649077112010-08-31T10:28:55.865-07:002010-08-31T10:28:55.865-07:00Dear Andy & Melissa and family,
This post is t...Dear Andy & Melissa and family,<br />This post is the sweet and tender story of the end of Max's physical life here on earth. It is a gentle story of two loving parents and two loving siblings who gave Max a warm and safe place to be while he fought this long battle. It is the story of a family who will love him and remember him and treasure him always.<br /><br />It is the story of how important it is that Max was home and you were able to take care of him in his death as well as in his life; to bathe him, to dress him, to lie beside Max and hold him close one last time for as long as you wanted to, as long as you needed to hold him; one last earthly hug. It is the story of Hannah's good-bye to her brother and the love between the two of them, as well as, the trust, beauty, and honesty of your lives that would bring her to make such a wistful and poignant observation about her baby brother.<br /><br />God bless you Mikulak family on this day and always. Max will always bring joy to my heart. I pray the pain will soften just a little and memories of Max will bring soothing balm to your broken hearts. with fond regard, Diane <br /><br />Memory is a way of holding onto the things you love, the things you are, the things you never want to lose. ~ From the Wonder YearsbigDhttps://www.blogger.com/profile/13588709280021561914noreply@blogger.comtag:blogger.com,1999:blog-9911796.post-2530703930355733092010-08-31T10:25:15.834-07:002010-08-31T10:25:15.834-07:00I am bawling reading this story...it is truly beyo...I am bawling reading this story...it is truly beyond heart breaking. <br /><br />There was something so very special about Max. I am still in awe at how a sweet boy I never met could make such an impact on my life. I still think about him all the time, especially at night when I look up at the stars and envision him off on some magical journey.<br /><br />It is hard to believe, when visiting this site and looking at pictures, that he is no longer here...and it is so hard to accept that a parent should ever have to face such pain and loss.<br /><br />I am sure it would have been easy to forget about cancer and move on with your lives, but instead you have taken an awful tragedy and used it to continue to do amazing work in the search for a cure, so hopefully someday you will help other cancer kids out there to lose their first tooth and reach the many milestones that they very much deserve.<br /><br />Again, thank you for sharing Max's life with so many...his years were far too few, but his impact is greater than many who have lived a hundred...Rebecca Hnoreply@blogger.comtag:blogger.com,1999:blog-9911796.post-21258698456719686912010-08-31T09:33:41.635-07:002010-08-31T09:33:41.635-07:00Oh how the tears flow, and oh how my heart aches f...Oh how the tears flow, and oh how my heart aches for your beautiful Max. Hannah, it isn't right he never even lost a tooth....<br /><br />I know how hard it is to revisit this day...bless you for writing about this for this beautiful heart-wrenching tragic picture of love and loss...<br /><br />Thanking God for Max's smile.Donna Ludwinskihttp://www.caringbridge.org/visit/erikludwinskinoreply@blogger.com