12/09/2009

Congress=COWARDS

UPDATE

File under, "One can hope." Thanks to Bob at PAC2 for keeping us all updated. The NCI comment smells funny - politics instead of progress.

All, There have been quite a few questions about follow up to the information I sent yesterday. Following is a summary.

The House has just passed omnibus appropriations conference report (HR 3288) by a vote of 221-202-1, with 10 members not voting. The Senate is likely tobegin debate on the bill either later today or tomorrow. The conference report is the final House- Senate agreed upon language.

The conference report is the report I referenced in my email communication yesterday in which there is:

* $3 million that will go to the Centers for Disease Control for a pediatric cancer registry

* $1 million to carry out informational services to patients and families affected by childhood cancer authorized under the Caroline Pryce Walker Conquer Childhood Cancer Act.

At present, it does not appear there is an appropriation for pediatric cancer research as authorized by the Caroline Pryce Walker Conquer Childhood Cancer Act.

The report also contains the following unusual language which we are attempting to clarify:

The National Cancer Institute reports that it is meeting the funding level identified for pediatric cancer research in the Caroline PryceWalker Conquer Childhood Cancer Act of 2008 within its base budget. The conferees commend NCI for its attention to this issue.

I hope you will hold off contacting your members of Congress until we have clarification on this language and until after the Defense appropriation is passed next week. This will provide the best opportunity to fully address the outcome for pediatric cancer appropriated funding.

My Best,

Kate Shafer, LICSW
Director Of Advocacy
CureSearch


Headline: Congress UNANIMOUSLY approves $30 million for childhood cancer research.

Benefit: They get to be on the record as supporting our kids and the #1 CAUSE OF CHILDHOOD DEATH IN AMERICA OTHER THAN BY ACCIDENTS.

Reality: Kill it in the sub-committee as its an APPROPRIATIONS bill and therefore only authorization to fund if they really wanna.

Wanna read more? Check out these links below:
NO Funding for the Conquer Childhood Cancer Act

Go ahead and die...I don't give a shit because you do not vote and you'll be dead before you are 18.

Understanding Appropriations – The Carolyn Price Walker Conquer Childhood Cancer Act

If you are mad as I am, do something this holiday season about it. Pick out a congressman/woman in your home state and shoot them a quick email letting them know that you know this wasn't funded. Forward this to your local newspaper...


Senate Appropriations - Labor, Health and Human Services, and Education, and Related Agencies
Name
State
Phone
Fax
E-Mail
RICHARD C. SHELBY
Alabama
(202) 224-5744
202-224-3416
DANIEL K. INOUYE
Hawaii
(202) 224-3934
202-224-6747
RICHARD J. DURBIN
Illinois
(202) 224-2152
202-228-0400
TOM HARKIN
Iowa
(202) 224-3254
202-224-9369
MARY L. LANDRIEU
Louisiana
(202) 224-5824
202-224-9735
THAD COCHRAN
Mississippi
(202) 224-5054
202-224-9450
JUDD GREGG
New Hampshire
(202) 224-3324
202-224-4952
ARLEN SPECTER
Pennsylvania
(202) 224-4254
202-228-1229
JACK REED
Rhode Island
(202) 224-4642
202-224-4680
KAY BAILEY HUTCHISON
Texas
(202) 224-5922
202-224-0776
PATTY MURRAY
Washington
(202) 224-2621
202-224-0238
HERB KOHL
Wisconsin
(202) 224-5653
202-224-9787
House of Representatives Appropriations - Labor, Health and Human Services, and Education, and Related Agencies
Name
State
Phone
Fax
E-Mail
Majority




Lucille Roybal-Allard
California
(202) 225-1766
202-226-0350
Barbara Lee
California
(202) 225-2661
202-225-9817
Michael Honda
California
(202) 225-2631
202-225-2699
Rosa L. DeLauro
Connecticut
(202) 225-3661
202-225-4890
Jesse L. Jackson, Jr.
Illinois
(202) 225-0773
202-225-0899
Betty McCollum
Minnesota
(202) 225-6631
202-225-1968
Nita M. Lowey
New York
(202) 225-6506
202-225-0546
Tim Ryan
Ohio
(202) 225-5261
202-225-3719
Patrick J. Kennedy
Rhode Island
(202) 225-4911
202-225-3290
James P. Moran
Virginia
(202) 225-4376
202-225-0017
Dave Obey
Wisconsin
(202) 225-3365
715-842-4488
Minority




Jo Bonner
Alabama
(202) 225-4931
202-225-0562
Jerry Lewis Ex Officio
California
(202) 225-5861
202-225-6498
Todd Tiahrt
Kansas
(202) 225.6216
202-225-3489
Rodney Alexander
Louisiana
(202) 225-8490
202-225-5639
Dennis R. Rehberg
Montana
(202) 225-3211
202-225-5687
Tom Cole
Oklahoma
(202) 225.6165
202-225-3512

 

1 comments:

Cowboy said...

I added a new one on the eve of the appropriations committee NOT funding the Act in 2010.

http://tinyurl.com/yjvufcm

Peace and Grace,
Greg

http://www.caringbridge.org/visit/mirandabeamer

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