That just says it all.... wishing for some measure of peace and comfort yet knowing in my heart how hard that is to come by. My heart will always ache for the loss of your beautiful boy.
We have some specific needs at Max's Ring of Fire... if you have time and room in your heart to help us out, please send an email (amikulak@maxsringoffire.org) and let's talk.
Max was born on June 30, 2001. He was diagnosed with stage IV, high-risk neuroblastoma in October 2004. He whizzed through frontline treatment and by the following summer was effectively on the road back to a "normal" life - albeit with almost total hearing loss, a new immune system, and about 10lbs to gain back, all courtesy of Mr. Chemo.
Unfortunately, Max relapsed (as most high-risk NB patients do) in November 2006. Max fought bravely, entering a clinical trial in Vermont where he received nifurtimox in combination with other chemo agents. This combination diminished the disease until there was just one tiny spot still evident on his spine. But in February 2008 the beast came roaring back and we could never control it again, despite everything we tried. Max passed away on August 31, 2008 at 8:45pm in his mommy and daddy's bed.
MROF
Max's Ring of Fire (MROF), a 501(c)3 tax-exempt public charity, is a pediatric cancer fundraising and advocacy organization that supports innovative pediatric cancer research and clinical trials. We are dedicated to funding practical, relevant Phase I and II clinical trials which are based on research from the University of Vermont, University of Texas/M.D. Anderson Cancer Center, University of Hawaii, UCSD, the Van Andel Institute, among others.
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2 comments:
That is just the sweetest picture!
That just says it all.... wishing for some measure of peace and comfort yet knowing in my heart how hard that is to come by. My heart will always ache for the loss of your beautiful boy.
Shirley
NJ
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